Medical Biobank

Name of biobank:

Medical Biobank
Adress: Umeå University Hospital, 901 85 Umeå
Telephone: +46 90 785 15 40 Fax: +46 90 785 26 42

General Information:

The Medical Biobank is mainly based on three cohorts:

These sub-cohorts together is named Northern Sweden Health and Disease Study Cohort (North Health). Originally, the Västerbotten Intervention program (VIP) is a long-term project intended for health promotion of the population of Västerbotten. All individuals 40, 50 and 60 years of age in the population of the county are invited for screening (approx. 254.000 inhabitants). They are asked to complete a questionnaire concerning various lifestyle factors including diet. They are also asked to donate a separate blood sample to the Medical Biobank for freeze storage for later research purposes.

The project started in 1985 and the cohort covered in December 2002, 74,000 individuals, of whom 67,000 had donated blood samples. The material is supplemented with population based samples from a local mammary screening (44,000 sampling occasions, 25,700 unique individuals) and from the Northern Sweden MONICA Project (11,500 sampling occasions, 7,500 unique individuals). The total cohort contains at the moment 85.000 unique individuals with 130.000 sampling occasions. The VIP and MONICA cohorts are population based and the mammary screening cohort are “nearly” population based.
Follow-up:

Responsible organisation:

Umea University, The Medical Biobank Foundation and the County Council of Västerbotten.

Responsible principle scientist:

Göran Hallmans

Rules for acess:

The Medical Biobank has been positioned as a national and international resource for scientific research and scientists from different countries are also applying for samples and information from the database. In order to maintain public trust in the health care system and for epidemiology, all applications must be:

Rules and guidelines for an access application can be sent after contacting the Database Co-ordinator Åsa Ågren.

Biobank content:

Life-Style Questionnaire: Every attending subject is asked to answer a questionnaire, which in the VIP and MONICA-projects includes questions about education, occupation/working conditions, daily habits including smoking, diet etc and in the mammary screening cohort on reproductive conditions. The dietary questionnaire has been validated twice. The data from the questionnaires, as well as from results from the biobank, are kept in a database for future research purposes. The questionnaires in the VIP and the MONICA project are optically read.
Measurements: Blood Pressure, Anthropometry, Glucose Tolerance Test, Blood Lipids

Blood Samples: The attendants are asked for their willingness to donate a sample of 20-ml whole blood for future analyses. The sample is taken after 4 hours of fasting or in the morning after an over night fasting (most samples) in the VIP and MONICA cohorts. The 20-ml sample is divided into 10 subsamples consisting of 6 plasma, 2 leukocyte (buffy coat) and 2 erythrocyte samples. All material is frozen at -80º C. The organisation of the bank is elaborated with specially trained staff and an organisation of transport-, storage- and security facilities. For DNA handling a specialised laboratory has been built up.

End-points: Mortality, Cancer events, Cardiovascular events, Other morbidity, Other registry-based follow-up
Registries: At regular intervals the cohort is scanned for incident myocardial infarctions (MI) and stroke utilising the Northern Sweden MONICA registry and for cancer using the regional cancer registry. In the future the same procedure will be applied also on other registries e.g. diabetes, osteoporosis, dementia.

Attached database:

Yes
Co-ordination of centralised databases and functional genomics: The basic concept of the Medical Biobank is to develop, combine and utilise the power of several cohorts. Several groups of scientists representing different research areas, ' universities and countries are participating. Research in functional genomics combined with bioinformatics and biocomputing has high priority for the future. To get sufficient materials various pooling projects (e.g. the MORGAM project, the EPIC project) are ongoing.

Variables in database:

Baseline examination, Life-Style Questionnaire (Heredity, Occupation, Social-economy, Previous diseases, Medication, non-prescript drugs, Dietary habits), information attached to fractionated blood samples and extracted DNA, results of previous studies.

Up to five selected publications:

Role in The National Biobanking Programme:

  1. To develop new systems of measurement and dispersion of DNA for genetic analysis, dispersion of plasma for protein studies, collecting buffy coat, DNA and RNA extraction
     
  2. To formulate a common strategy and to establish and distribute standards for a future national quality system for "good biobanking practice".
     
  3. To act as national co-ordinating centre for receiving feed-back about biobanking Quality assurance.

 


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